As I was recovering from my second major bout of depression, I was introduced to Brene Brown’s well-known TedTalk on shame. It didn’t really make a lot of sense to me at the time. However, looking back on my two bouts of major depression and their lengthy recoveries, it is clear that I had a great deal of shame.
The first experiences I’m reminded of when I think of shame were the times I would go to the local pharmacy to pick up my medications (originally, several). I would wander around the store to make sure that there were no neighbors who I knew that would see me purchasing medications. What would I say if they happened to ask what medications I was getting? How would I respond if they asked me if I was sick? Now, also in hindsight, there was clearly a component of anxiety in play at the time. Anxiety often goes hand-in-hand with depression. That being said, there was clearly a component of shame in taking medications for a mental illness. When I’d return home from the stressful trip to the pharmacy, not only would I immediately throw out the receipt or any other evidence that I was taking an anti-depressant, but I would be sure to first tear it into many pieces. I also quickly hid the medicine in my underwear drawer, just in case someone would come into our master bedroom and see them.
When I first had depression, I would see my family doctor for medications. I remember sitting in the waiting room, wondering what would happen if someone from work would happen to see me? Would I lie and say that I was there for a physical? I remember jockeying to find a seat in the waiting area that was conspicuous enough spot so that very few people could see me. I’d even hold a magazine near my face, covering it as best possible without being obvious. Focusing more on not being seen than actually reading any of the words on the pages. All of these actions, again, based upon my shame of needing to see a doctor for depression.
I was concerned about having to take too much time off from work in order to make it to my doctor appointments, particularly when I was first diagnosed seeing the doctor frequently. What would the staff at the school I worked at think if I was gone frequently for appointments, coming in late or leaving early? More shame. And once my depression got more severe, I had to starting seeing a psychiatrist. The psychiatrist who I chose to see was at a Behavioral Health clinic. I certainly knew the excuse of being there for a routine physical or a nasty cold wasn’t going to fly had I seen someone I knew. They’d instantly know I was there for some type of behavior health concern. Solely based on my shame of bumping into someone who might recognize me from the large school district I had been working in for many years, I considered changing doctors. In the end, I decided that seeking out a new psychiatrist would be too stressful and not feasible. So I gritted through the experience of sitting in the waiting room for each of my appointments, hoping desperately not to bump into someone I knew or who even looked vaguely familiar.
Early on in my depression, I ordered two books about depression (as shame would prevent me from purchasing these books in person at a bookstore where people may see me making such a purchase). These were incredible books by Matthew Johnstone that do an amazing job of helping others understand what it’s like to live with depression, or to live with a loved one who has depression. I read them, shared one with my wife, and then gently hid them away on the top of a tall bookcase in the basement. Not on the top shelf, but on the top of the bookcase, concerned, due to my shame, that someone who was visiting us at some point in the future might just see the books and ask about them.
When my suicidal thoughts became pervasive and plausible, I had to make the excruciating decision to take time off from work in order to check myself into a partial hospitalization program. Excruciating, as I nervously wondered what the staff who I supervised would say if I was gone for three weeks or more? What would I say when I returned? The shame was powerful. I nearly chose not to take time off and not to receive the help that I needed because of this shame. I had brought my wife and sister to my final appointment to advocate for me, as I did not have much confidence in the psychiatric physician’s assistant who I was seeing. Sure enough, the psychiatric physician’s assistant played into that shame, sharing with me how challenging taking off work may be. I was thankful for bringing my wife and sister who strongly advocated for me to enter a partial hospitalization program. In the end, I believe taking work off and entering such a program actually saved my life!
It was shame that kept me indoors when I took sick time away from work. I knew that it would be better to get outside. I knew I should be helping my family by running errands and driving our kids to activities. I knew that going for walk, getting a bit of exercise and fresh air, rather than isolating myself inside of the house, was important. However, the fear, once again, of bumping into someone I knew and having to explain why I wasn’t at work was terrifying for me. The shame of taking work off for depression was preventing me to do the things I needed to do in order to recover from depression and to help support my family.
What does stigma have to do with this, you may ask? I believe that a strong stigma still exists in much of the US. I believe the shame that many people face in dealing with a mental illness is directly related to this stigma. Because of the stigma, people are often uncomfortable to talk about mental illnesses. People with a mental illness are often judged and/or labeled. A mental illness is just like any other illness and should be treated as such. As many people say, mental illnesses are invisible. Yet, it’s important to understand that they are just as real as any other illness. A mental illness doesn’t make anybody any less intelligent and it certainly doesn’t make them violent, as a fair amount of myths may lead one to believe.
We need to normalize conversations around mental health, just as we have around cancer, diabetes, heart disease, and many other serious illnesses. One way to normalize our conversations is by sharing our stories of mental illness. Sharing our stories helps to educate those who may not understand mental illnesses and to support those who are struggling. The more we talk publicly and openly about mental illness, the more we do away with the stigma and the less shame people living with a mental illness feel.
Shame is powerful. Shame is dangerous. Shame often prevents people from getting the help they need. Shame played a role in me nearly taking my own life. Help normalize the conversations around mental illness, help end the shame!
Please tune in to my podcast, The Depression Files to hear me interview men who have struggled with depression. Inspirational stories of hope and perseverance!
As always, I welcome and encourage comments to this post. Thank you!
Shame was part of what stopped me from seeking help when I first got depressed, and that definitely contributed to my decision to speak out against stigma.
Thank you for your comment and thanks for advocacy work! Together, we can all make a difference at chipping away at the stigma! Al
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It is so important to share our stories! Thank you for sharing yours. I try to talk openly about my mental health with family and friends, as well as online on my blog. People may not always get it, but it’s important to keep the dialogue going. With time people begin to understand a little bit more.
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Thank YOU for keeping the conversations going. Our conversations and sharing our stories help to normalize the conversations. Keep up YOUR good work! Thank you for the comment and stay healthy! Al
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Al, having watched you, as my brother, go through all of this – I can’t say enough how much I agree with you that we have to eliminate the stigma to begin healing and eliminating much of the shame that you felt and many others feel. Listening to you back then be so so afraid of people finding out and what would they think was hard and I felt terrible that you had so much concern and anxiety over it. As you said, it made healing much more difficult.
I can’t say enough about your perseverance and determination to get healthy and how much of an amazing advocate you have become for men with depression. Continue and build on your work it is awesome!
Oh my wonderful sister…she helped me through some of my darkest days. Thank you, Faith. I love you 🙂 Al
Definitely definitely definitely! Shame is probably half the illness in the first place, and surely exacerbates the sickness. I struggled through similar shame and did similar things as you mention in this post, all revolving around not wanting to be known as someone who is sick in any way. Why can we talk about even contagious physical ailments while working through them but can’t even mention having mental troubles??! I suppose it’s so new in society to understand our thoughts, and understanding our physical bodies came first.. and so since we don’t understand it, we are apparently innately afraid of it. We need to talk more from experience, bond over past struggles, and end the stigma! Thank you for this post and your blog, and keep on keepin on brother
Thanks for your thoughts! I really appreciate that! Hopefully, sometime in the near future we’ll all be able to talk about mental illness in the same ways we talk about contagious physical ailments! Thanks again! Al
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Thanks for posting! Al
Asking for help is a strength! Diseases that primarily affect brain chemistry are stigmatized when we refer to them as mental illness. Let’s refer to them simply as illnesses.
Thanks for taking the time to read the blog and thanks for sharing your thoughts. I really appreciate that. Personally, I think referring to depression and other mental illnesses as simply an “illness” perpetuates the stigma. It’s saying that we shouldn’t say the words “Mental Illness” because we’re worried of the reaction or actions others make take based on the statement. We need to begin to normalize mental illness by having the courage to talk about it and by sharing our stories, just as we talk about any other type of illness. Mental illness distinguishes itself from a physical illness, as it refers to the brain. We should have no shame talking about mental illness. In fact, we should be talking about it much more often and much more openly than we tend to do so.
I just wanted to share my thoughts. Again, I appreciate and respect your comments and your perspective.
Thanks again for checking out the blog, and even moreso, for taking the time to comment!
Stay healthy! Al